Friday, November 6, 2009

I'm Tired

I'm tired. I know every mom can say that. I know every mom is tired and spent at the end of the week.

But I'm really feeling it. Princess has been home for a little over two months. I have taken her to the doctor 27 times. Yes, 27 times. And this week has been, well, hard. There's no other way to say it.

I wasn't prepared for the sores on her tongue and around her mouth after surgery. I wasn't prepared for her to just stop eating and drinking. She is so tiny she needs every calorie she can get. I wasn't prepared to battle her every single day about her thumbs. She so desperately wants to pop them back in her mouth. But if she does, she could jam them right through her palate. Which would mean a repeat of this entire week.

But today, I got the biggest surprise of all. It was a beautiful day, so we met some friends at the park. Exactly one week to the hour post surgery, she climbed up to the top of the slide, smiled, and slid down by herself. I know that's a pretty typical thing for kids to do. But Princess isn't typical. She could barely climb stairs last week--her muscles just aren't developed.

As her mouth heals, I am seeing more confidence in her. She also said her first sentence today. She said, "Love you, Mom."

I may be exhausted, but that's enough to make me want to get up and do it all again tomorrow.


  1. Yes those words do get more Moms through a day and night when every thing goes wrong! I must admit our daughter who is NSN has been to the doctor more than any of my children one who has been with us 14 years and the other 5 years! She has been home 18 months! :) it does get better but boy at night I am ready to hit the hay too!
    Hugs Ruth in NZ

  2. The sweetest sentence you could hear. I'm sorry it has been hard-- boy, perspective, you've been at the doctor for about half of the time you've been home. Praying it gets easier.
    Be blessed,

  3. Hang in there Amy and Jonathan. You are doing truly a noble thing. We often talk about doing this and that but you two have actually become the answer to someone's prayer and that's a wonderful thing. God bless your whole family! - Andy